Quote:
Originally Posted by Stellatum
Beannie, I was surprised to read that you have not had a SFEMG. It's considered much more accurate for the diagnosis of MG than a regular EMG. Not every neurologist knows how to do one--you have to find a neuro who specializes in neuromuscular diseases.
SFEMG is the test for seronegative patients with symptoms that suggest myasthenia gravis. I hope you can have this test soon.
Also, you say the "regular antibody test" was negative, and that you're waiting on other tests. Are they testing for other MG antibodies? They should test you for MuSK antibodies and LEMS, too.
Abby
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Stellatem I am trying to locate some one who has actually been diagnosed with Lems. I was diagnosed 9 months ago and so far have not been able to locate anyone else in Australia despite lots of people trying for me. Many thanks.