Hello All,
I was diagnosed in oct. 2011. I was crushed as I watched my mom go through the disease and did not want to be like her in many ways. I have gone thru being optimistic to having enough. It is not like me to give up but it is getting harder everyday.

Originally I was in a double blind study of Ocrelizumab/Rebif, but had to stop the study after 8 months off and on. We were pretty sure I was getting Rebif because of the side effects I was having and eventually had to stop because my liver enzymes went thru the roof when the drug was reintroduced even at the lower dosage. Initially after I took copaxone, but it mentally did not work well for me. The study injections 3x's a week were bad enough but the daily doses of copaxone consumed me all day every day. So I stopped.

Recently I found another neurologist closer to home to get back to taking care of me(the original doc was 45 minutes away and in the same practice of my mom's now retired doctor. I liked him but it was so hard to do being so far) The new doctor which I saw only once so far seems good. He realizes I am tired of being a guinea pig and just want something that will help.

I am thinking of trying Tecfidera. My problem is the daily fatigue and muscle aches, numbness and pains. The doctors prescribed Neurontin and I take 500mg of naproxen several times a day, but it barely helps. Does anyone have any suggestions. I own a business with my husband and need to have my wits and mind in tact but the pain distracts me. I have a hard time with daily functions such as food shopping. My teenage daughters do help but a trip to the store with them will put me out of commission the following day for example.

I'm not expecting miracles but I can't take it anymore, life stinks. I commend you all for your positive attitudes and struggles, I just can't figure out how to get there