Well, Fall is just about here so the weather is changing and so is my pain. This summer I was starting to do pretty good. Most of the time I almost felt like a person, but now...CRAP! My CRPS has spread from my left ankle to both legs and lower back and I am terrified of the cold weather that is coming. I don't know if I am going to get through it. The last few days have been hell and it hasn't even been that cold yet. We have had back-to-back storms though. Yesterday I could barely walk, and I have been getting more frequent flares that are intense! I soooo don't want to do this. I remember last year. It was the worst time of my life going through that much pain and it was only in my ankle. I can't imagine that pain in both legs! I am freaking out! I am really trying hard to stay calm, but it is really hard. I know stressing is just going to make it worse, but I can't help it. I don't know what to do. I just can't do this!


My doctor (the only one who hasn't given up on me) wants to send me to Seattle. He is hoping we can find someone there to help me. I am not sure what to expect. I am going to find out about as many treatments as I can to bring up to them though. The only thing that I was able to try was SCS and some meds... Lyrica and Cymbalta and Oxycodone/Hydrocodone. There must be other things out there that I can try to help me with my pain. Right? Surly when those doctors told me there is no hope it was not true. I am really hoping they are just ##*^^&*!!! LOL