Hello, I am in desperate need to just talk to someone else who has this. I have been through it all, including misdiagnosis of thoracic outlet syndrome which led to first rib resection on each side of my body, and extreme painful, hospitalized infection after each surgery. I've had 9 surgeries. I'm 35 and female. I'm on 13 meds, including methadone, dilaudid, soma, Topamax (the only one that will work for the nerve pain) and and bunch of others. My neuro put me on Namenda to see how this will do to "re start" my brain. I've had to double the dose twice now.
I've been denied SSI twice, working on the 3Rd phase now. My private disability insurance company, the Hartford, or The Bastards, are just about to deny my long term claim. They have done everything in their power to do so and I am just waiting for the letter now. At least I found my attorney already. I'm just going to be homeless in 6 weeks. I've also been denied medical because I'm not poor enough yet.
My great grandmother taught me never to be financially dependent on a man, which I am so thankful for, I'm still not poor enough to qualify for anything but I'm going to be homeless because I still need to save enough $$ to pay $700 per month for cobra and prescriptions.
My arms are hurting from typing and I'm gonna pay tommorrow for typing this, but I'm trying to find someone who has my disase specifically. I already have to go to therapy for my pain psychiatrist, and have a pain dr... I have a whole team of dr's, most or Chief of Staff and think they are god.

I'm just so sick of it all. I even have a mother who used my disease to get more alimony out of my dad by saying she was going to take care of me in a couple years. But I just asked her to live with her right now and it would stress her out too much. Of course, the judge just ruled in her favor. I know there is someone else out there who looks normal but is in so much arm and chest pain you would rather die. I know I've tried a couple times because the pain was so much