Junior Member
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Join Date: Jul 2013
Location: Eastern Pennsylvania
Posts: 80
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Junior Member
Join Date: Jul 2013
Location: Eastern Pennsylvania
Posts: 80
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Sorry, Synnove, I intended "that's wonderful to hear" as a response to Bluebelle. Thanks so much for sharing your longer and tougher journey. I don't have a firm diagnosis yet, but the neurologist says it's not JUST small-fiber, and I've detected some signs of what may be autonomic--so I may be facing the same triple threat you are. (And it's all still "idiopathic.")
As for the side effects of amitriptyline (which is supposed to be a form of nortriptyline), I started on 10 mg nortriptyline and increased by 10 mg a week, and that did seem to minimize dizziness and even dry mouth.
I hope I don't have to increase gabapentin too much. I don't like the prospect of a medication that induces some of the same problems -- such as coordination problems -- as the disease I'm taking it for....
Good luck with your current meds strategy, which makes sense to me.
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