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Old 09-08-2013, 03:49 PM
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
Member
 
Join Date: May 2013
Posts: 135
10 yr Member
Default Hi Kitt

No documented family history. My dad, who is 75, is experiencing carpal-tunnel symptoms right hand mostly, a little in the left, per an EMG. No arm, foot or leg symptoms from him. Because of that, my neurologist said the hereditary testing would most likely not be covered at this point by my insurance, which I verified is true. My damage is axonal (I know CMT type 2 is axonal, but still they won't order the full testing.) Also, because the large majority of my symptoms are on the left leg/foot only, steers them away from CMT. The huge sensory component steers them away from ALS.

So we've also ruled out CIDP, autoimmune bloodwork is normal, I have been corrected for low B12 and vitamin D & hypothyroid. Not a drinker and don't have diabetes.

I've covered the gamut of testing in the last 9 months. The only abnormal thing that hasn't been addressed is my lumbar/sacral MRI. I know this may or may not work. But if I don't do it, I will never know.
__________________
Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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"Thanks for this!" says:
Kitt (09-08-2013)