I hate that question at the doctor every time... "what type of pain is it burning, stabbing, throbbing?" I don't know!! I never know what to say to that. It's all and none of the above. My pain is just there. What do you say? Sometimes it feels like I'm being jabbed with a knife, sometimes bee stings/bug bites, tightening pain? Pain in my legs now is like somebody is sliding a hand under my calf muscle and peeling it off the bone... but squeezing it too. I just don't know what to say anymore.

So frustrated with all of this. Some days even I have pain but then I'm not 'sure' about it. I don't know if that makes sense. It's like I'm getting so used to the pain I'm just not that aware anymore of it.

Also being asked the degree of pain 1-10... well, I don't know what to say there either. One moment it'll be hmmm, a 4 but then the next it's a 9. Then, try and think what I'd gauge it before all this hell started and can't tell.

Frustrated and losing hope that I'll ever know what is wrong or get a diagnosis. I don't want to live the rest of my life like this with no answer. Just a fog of pain and fatigue. Seeing doctors who I feel aren't listening or don't believe me.

I've been tested for everything under the sun and it all comes back 'normal'. My MRI's are "pretty good", one lesion but only comment ever made on that is that it isn't conclusive. Is it wrong to want a new MRI at this point and hope it's full of lesions just so I have an answer? How warped is that?!