I just average out the pain level when the nurse asks me, and I don't think the doc looks at what she writes down. I don't go to a neuro any more, my doc is a hematologist for another disease, and he basically looks at my blood test numbers and tells me to come back in two months. He is just monitoring the progression or non-progression. He does complement me on my bright colored clothes, however (I wear Solumbra cloth clothing in either black or raspberry colors, to keep sun out--they are SP 100. I get lesions if I do not block the sun. The doctor likes the raspberry clothing.

I also have a hard time describing pain, but I've decided it varies from time to time from stabbing to the long ache of spasticity. So I just tell them that, it varies from time to time. But it's not the hematologist I discuss that with, it's my pcp, who is my best doctor. The only neuro who really helped retired years ago, and I haven't seen a neuro since then, as I can't take the MS drugs anyway. I find the Swank diet, rest, rubbing out spasticity, and the supplements like magnesium which the good neuro told me to take for spasticity and jerkiness, are the things that help and no neuro would help me now anyway.