It takes the simple things away like going for coffee or to lunch and small errands are hard to do.
It takes away a care free lifestlye and everything has to be planned around if in to much pain to go.
It creates anxiety when the severe pain will come on that even meds can't help.
Also when new syptoms may start and the fear of the unknown that something serious is going on that isn't being dx or treated right
Hurts your family as they watch you suffer
Unable to work and puts financial stress
Being in so much pain doesn't let you focus on other things then the pain
Makes it hard to hold to hope
Makes days that are pain free so wonderful and happy
You realize that health is #1 and other things like money or looks mean little
You do meet special people that you have a special bond because unless you experience this you really can't understand.