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Member
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Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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Member
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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I am very glad you saw the Dr. and he at least knows that you are passing out.
However, you seem to working on a premise that isn't true. When you have a seizure, you do not have a pain in the head first. That is not at all the case! The neurons in your brain start to fire too quickly, which you don't feel at all. For me, the symptoms change with each seizure. Sometimes it's "feeling like my head isn't attached to my body anymore, it's floating separately"... or I just feel nauseous and light-headed. Other times I have intense pain in some part of my body, could be anywhere, but it's mainly in the legs, where my rsd is the worst. The worst of the seizures are more painful after it's over... muscles ache from stiffening or flopping around during the seizure. Nerves are on fire and "buzzing", as they receive the "overload" signals from the brain.
I don't get ALL these symptoms with each seizure, it's a "mix-and-match" sort of thing, lol. For months, when this first started, I couldn't even tell when it was about to happen... it took becoming more aware of my body, paying more attention, really... to know what was coming. Plus, the first ones involved none of what most people think of as a seizure. There was NO flopping around, it looked to my honey like "I was just passing out", that's what he told the Dr.
What you really need is for your carers to watch what is happening to you before and during one of these spells. YOU won't know at all what is going on, as it's happening to you, lol. It's up to them, at least at first, to figure this out. If they see a "look on your face" that doesn't seem normal, or you aren't responding to them as you should be, you look unsteady on your feet... all of these can be signs.
I'm NOT trying to convince you that you have epilepsy, not at all, lol. I just want people here to be more aware that it's a distinct possibility for rsd'ers to develop the disease. It freaked me out when I was told that... I'd never heard that there was even a remote possibility, never seen it written about in any rsd literature.
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There are only two types of people in this world... those who bring you peace and those who don't.
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