I always feel like I'm waiting for the other shoe to drop, a nameless anxiety of waiting. At 46 was DXed with MS. Did Rebif 2 years and nothing, good or bad. Neurologist and I agreed, it seemed like classic PPMS, have never RRed. We also agree no more MRIs. First couple of years, didn't seem so bad, just had to pee alot. Then I started wall-walking and falling. From Canadian crutches to walker, 4 years ago went into chair. Some sleepless nights, stabbing pain, throbbing shoulder pain. But although still in a chair, can self-toilet, am tired in afternoon but don't nap. Still can't walk, memory seems fine although I am 57, no pain. Short term memory varies - is it age, lack of interest or MS?

But I can't relax, expect MS to take another punch at me. Don't dare to hope (in case MS is listening) I'm in a plateau. I'm totally confused.