Quote:
Originally Posted by Susanne C.
Sometimes it is a lot better if they don't pretend to know more than they do. I was devastated when my neurologist fired me because CMT is progressive, there is NO treatment, and she doesn't do pain management, but I have since heard horror stories of multiple failed surgeries, therapies, etc. where the doctors wouldn't admit their limitations.
I have since come to appreciate her honestly and to question why some people with this condition have a whole team of specialists they see and presumably pay each year...
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Susanne,
Once again your courage is an inspiration. On some level I know that that the specialist I'm seeing next month (to diagnose my idiopathic PN) may not have any treatments, or any encouraging news, to offer. In the back of my mind is the fear of being (as you put it) "fired" by the neurologists. Thanks for pointing out that this may be the MOST caring approach. And thanks to you and others on this board for showing how to face even a pretty depressing diagnosis and still find strength and joy in life!