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Originally Posted by Susanne C.
Sometimes it is a lot better if they don't pretend to know more than they do. I was devastated when my neurologist fired me because CMT is progressive, there is NO treatment, and she doesn't do pain management, but I have since heard horror stories of multiple failed surgeries, therapies, etc. where the doctors wouldn't admit their limitations.
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I know I've posted this link before; I think it helps explain why some people are "fired" by physicians.
A Letter to Patients With Chronic Disease
While I agree that doctors should be more candid with patients, at the same time I recognize that those doctors don't want those patients to lose hope because that particular doctor cannot help them. Medicine is a (lifetime learning) process, and while some doctors are more comfortable sticking with what's well-known (conservative) others are forging/pioneering new knowledge. It's a sticky wicket.
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I have since come to .... question why some people with this condition have a whole team of specialists they see and presumably pay each year...
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Yet you're here and on the Web (almost) every day continuing your search for answers/information, and doing everything you can to improve your health.
I think the answer/reason is the same—
Hope.
Doc