Quote:
Originally Posted by ChaucerFan
I have no experience or expertise to offer myself, en bloc, but when I called up your posting I noticed four links at the bottom of the screen for threads having to do with Mestinon. They seem to be on the Myasthenia Gravis neurotalk forum. I think some treatments and tests for that condition are also used for peripheral neuropathy, so there MIGHT be relevant postings there. In any case, I'm glad you've finally made contact with a specialist in autonomic PN, and I hope you'll find something that will help. Your story puts my whining about not being able to walk very far into perspective.
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Mestinon is, in fact, used primarily for MG. They have since found it helps with autonomic dysfunction.
Thanks for the thought about posting on that board. I had thought about it, but I don't have MG. Being that autonomic neuropathy is a facet of PN it seemed appropriate to post here where others with autonomic issues would read or post.
It's not widely used for this purpose yet, so I'm not surprised that I didn't any specific replies from others using it.