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Old 09-12-2013, 06:54 PM
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Grand Magnate
 
Join Date: Jan 2008
Location: Illinois
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15 yr Member
barb02 barb02 is offline
Grand Magnate
barb02's Avatar
 
Join Date: Jan 2008
Location: Illinois
Posts: 3,836
15 yr Member
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Sally, I read your post and thought about responding and then decided not to. But I am back.

First, I hope your daughter is not having a major relapse. I will be saying a prayer for both of you.

Second, I do think you should be perhaps a bit more open to at least discussing the various options with her. You have read a lot about the new therapies. Describe the pros and cons and help her find out more information. Your daughter sounds like a responsible, educated woman who is exploring options. Yes, some of these new therapies/meds may have nasty side effects and even the slight possibility of PML. But isn't it important for her to explore these if she is having a relapse and her current dmd is not working? She has a lot of responsibilities and I am sure she is afraid that she will not be able to meet them in the future. So it makes sense that she is going to seminars and trying to find out more about them. It will probably help her feel more in control if she has a plan.

Finally, I do not believe that all doctors are just a pimp for pharmaceutical companies. Maybe some are, but I know that my neuro is not. Yes, he wanted me on a dmd. When he saw how my body reacted to them and tysabri, he is now hesitant to prescribe any of the new oral meds. The MS specialists I saw at Barnes hospital agreed with him. He discusses the new meds with me, but he definitely does not push them . I believe there are other doctors like him. Hope, I am not being naïve.

I know you are just being a mom and worrying.

Just saw your post. Glad she is not having a relapse. I don't think a drug rep would be discussing CCVSI since it is a procedure not a drug therapy.

Last edited by barb02; 09-12-2013 at 06:57 PM. Reason: typo
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