This is certainly an interesting thread. I am the wife of a PWP and, believe me, there is nothing we would like better than for Rich to be able to participate in a Parkinson's trial. However, due to psychotic issues which still remain unresolved, he is not a candidate for participation in trials. There are many reasons I'm sure that people can't participate. I have taken my husband to many doctors and not one can say whether or not he had a breakdown and Parkinson's was a separate issue, or whether his mental state was precipated by the Parkinson's. It would be exciting to partake in a clinical trial that was testing a neuroprotective therapy; however, I'm sure there are many people who simply don't meet the trial criteria and are eliminated from consideration. I also believe there are a lot of people who hope someone else participates so they don't have to, never considering the consequences of that decision. These are just my rambling thoughts.
Maureen