Quote:
Originally Posted by mopo
I was diagnosed with crps five years ago and for the last 2 years, I've been checked out from getting current medical care by having my pcp fill my prescriptions. I just needed to step back from the 12 different doctors that had been involved with my care. Several specialists agreed with the diagnosis. I decided that I should go back to a pain specialist/neurologist to monitor my health and to find out about any new treatments. The new pm has some doubts that I have crps because many of the symptoms I previously showed were not visible at my appointment. When I began taking the 9 different meds that I currently take, most symptoms had some relief. Swelling went down, one could actually touch my legs with out me freaking out, color changes stopped, etc. The doctor wants to take me off 3 pain meds which I know will produce severe pain. He just doesn't think I'm in as much pain as I should be if I have crps. Once you began taking meds (Lyrica, Fentanyl, Percocet, tramadol, etc.), did some of your symptoms stop showing? Of course, I am wondering if I'm crazy because he doesn't believe me since he hasn't read other reports. Any similar experiences?
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Welcome! Sorry you have to be in this situation though!
Could you ask to keep RX in place while you try to wean off and see what happens? Then you could go right back on them if need be?
Well, yes my symptoms improved somewhat with meds. Mine are Lyrica, Cymbalta, Ketamine cream and Nucynta (substitute for Oxycodone). I have had the most relief from nerve blocks, but after 13 of those now the effects are not as significant. The nerve blocks made a huge difference in the appearance of the skin and tissues, so in that respect the CRPS is not nearly as obvious as in the beginning. I'm still left a contracted hand and disfunctional wrist but with extensive P.T. that is much improved because I had NO movement at all in the beginning.
But like the others have said, I have yet to find a real pattern to the pain. The burning is now intermittent thru out the day. But all the other types of pain still break thru in a total random manner.