I have Congenital Myasthenic Syndrome. It is rare, and even more rarer then
MG. I doctor out of Mayo Clinic for it. Lived the majority of my life thinking I had a form of Muscular Dystrophy until about 6 years ago, when I was diagnosed with CMS. I have been blessed because I was so sick, weaker, had a gtube to feed me, and had full time care. Now I take Albuterol 3 times a day and I no longer have a gtube, no longer need full time care, and I am tons stronger then I was 6 years ago. I have to doctor for this condition at Mayo Clinic. I live in Ohio and noone here knows how to treat it. I would like a sense of community with other MG or CMS patients. I want to hear others stories. I hope I can find that here.