*** I have mentioned time and time again, I have 2 mutations in my Parkin gene; deletions of exons 3 & 5. My doctor has been seeing me quite frequently as of late in an attempt to see if my DBS surgery has been beneficial or a hindrance to me.. My batteries are over 8 years old and show signs of weakening. He has determined my left side is being helped but is concerned that my right side is being helped. I am to go in this Monday, 2 weeks from the last time I was in
and am to be off meds. He turned off my right side already. I know they need the information, but I am tired of being a guinea pig.

Dianna