Senior Member
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Senior Member
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Dianna,
I'm sorry to hear of your problem.
As I see it, we shouldn't be in a situation where we don't know if our therapies are working. It should be possible to collect enough data from a person to know whether something is working, by how much and, if it stops working, when the change occurred.
It should be possible to collect the data without the direct involvement of the patient: it just happens as you go about your life.
For instance, clothes can be made out of special cloths that collect biometric data.
I don't think that a "cure" for PD will be found soon enough to help me. BUT, and it's a very big "but", there are a thousand and one practical things that we can do now to improve the quality of our life.
Worth the fight?
John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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