Junior Member
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Join Date: Sep 2013
Location: Toronto,ontario,canada
Posts: 15
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Junior Member
Join Date: Sep 2013
Location: Toronto,ontario,canada
Posts: 15
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ms/als or Not
hi jesscosmo....I hope this message reaches you..i am new to this site....I have had all of your symptoms, and its been progressively worse, now I am walking with a walker outside and a can in and around my condo...I have been seeing a neurologist since nov. 2012 and am going for a second opinion this November, I went for an assement at a leading pain clinic in our area and her diagnosis is 'hypersensitivy of the central nervous system' I think the neurologist said chronic pain syndrome..however no one is addressing the leg weakness, breathless ness , cramping and spasms....I am going nuts...and some times I feel just live with it..if it gets worse ...I'LL SHOW THEM! BUT.. then I will probably be in even worse shape....I , at this moment give up too! GOOD LUCK!
Quote:
Originally Posted by Jesscosmo92
Hello everyone, I am new to the community, and I am pretty familiar with a lot of illnesses, however I am rather stuck on this new weird symptom that is dooming me a lot lately..... it started that I was having weird restless sensations all over my body, whis being on any anti depressant, being I needed it I continued on taking it, just before discontinuing it i was dealing with a lot of stress at my job as a stylist and put in my two weeks notice.... I woke up one day with this weird CRAMP like sensation under my tongue, and it got so bad i started to gag, like a lot..... so I went to the ER and the said it was Tardive dyskinesia, because of minor quivering in my tongue and sent me home with Cogentin, an anti parkinsons medication... I woke up the next day frozen in my bed unable to move, i was so sick and my tongue was cramped up so bad i began gagging, and couldnt talk without gagging, and i went back to the er, by ambulance, they took me off cogentin gave me anti anxiety ATIVAN and ondansetron to stop possible nausea and vomiting... i saw my regular doctor and she told me it was definitely tardive dyskinesia and kept me on ativan, and it went away for like a week, and here im about to start a new job a month later and my symptoms are back, being worse at night. in detail th symptoms are
Cramping under tongue
cramping in jaw
jawpain
I have been clenching my teeth from nerves (tooth pain)
tongue stiffness
tongue srawlypasms
slight faciculations in my tongue
a pain in my salivary gland, almost as if someone is pushing under my chin on my salivary gland with their finger really hard
a feeling like as if im going to gag, but not nauseous
I am not having trouble swallowing
crawly feeling in a few spots in my back, ive had this awhile
I am anemic, not b12, but iron deficient.
Anorexia for many years *stable now*
Vitamin D defficient
calcium defficient
Havent started new vitamins yet
No doctor knows what this is, I see a neurologist in late October and a new psychiatrist next week, im hoping they can get me into the neuro sooner, I am very scared that I will live with this forever, or it will get worse, or it could be ALS... someone please sign some light on me. Thank you everyone   
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