Quote:
Originally Posted by smallbc
Hi
I was hoping you could help. I have been having muscle issues causing
face drop
head drop,
vision issues,
limb muscles weakened,
breathing issues.
Speech dyastheria
I have been in hospital had nerve tests, blood test but neuro consultant said they are clear, but still looks like mg.
Can you tell me if those tests are the only way for a diagnosis or can I ask for something else. These melts are ruining my life and I really want to get to the end of the issues and wondered if you could give any advice?
Starting to think I am going crazy and I am making it happen on purpose.
Any advice will really help.
Thank you
Christine
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Hi Christine..
I too experienced a lot of the same issues you do. MY lips get numb at time, my speech sounds like I have been drinking as well as my right eye gets drropy. Since I was diagnosed and placed on Mestinon and Mycophenolate, it seems to have helped. I still have episodes when I get realy tired or stressed or try to chew too much. But no your not going crazy it all seems to be part of the disease.
Ron