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Old 09-23-2013, 12:55 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
Default Someone has to do it. Too bad it is us.

It is hard to know where to begin. Yes, this site has traditionally been a refuge for the "elite" including at one time a certain Canadian actor starting a new show this week. And there have been a LOT of good people pass through. Some moved on. Some disappeared. Some died. Some still lurk in the shadows. Some have just arrived. Hey! That's you!

First, forget the willful ignorance approach. It s dangerous. Your doc's know very little about PD. You have to know more. You have to be your own advocate. And, if you have a background in research, you have an obligation to this community to use it as we work to work out the puzzle. Hint- the dopamine is just the beginning. Maybe ten percent.)

You have an obligation to yourself, too. These are critical years for you. There are opportunities that wont ever come again. And decisions that you will be living with decades frm now.

There is a ton of info in the archives. Learn to use the search function.

Welcome aboard.

Oh, about those legs- some possibilities include (in no particular order) wheat gluten, B vitamins, electrolytes, muscle atrophy.
__________________
Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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lab rat (09-24-2013), Thelma (09-23-2013)