Dear evandtwins......it's taken me 5 months to finally get a diagnosis of advanced small fiber neuropathy and that took me asking for the biopsy myself. I'm so new to this (happened a month after chemo finished but also have diabetes). And you are right......I feel my family gets tired too of me talking about my pain so when they ask how I am now I just say "fine"

Can I ask what medications you are on now and what you've tried in the past to get some relief ? I'm just beginning this journey and the pain is unbearable throughout the day. It ebbs and flows all day long. My husband had doubts about whether this was real or not (we've been married almost 34 years) but the biopsy convinced him that all he sees is real for me.

When I'm at my worst I try to remember there is someone worse off than me. It's HARD, HARD to do but I try. Just look at your children's faces and know it will get better. You've come to the right place. I just signed up today but have been reading threads since Dec 2012.

Please let us know about your meds so someone can give you suggestions. And what type of dr's have you seen about this ?

From Georgia: overcast with a chance of meatballs !