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Old 09-25-2013, 05:12 PM
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
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Hi again. I initially had 8 nerveblocks with one week intervals and then straight to pt that day or day after. I asked to be be under for them because the thought of a needle in my neck made me want to pass out. They helped a little along with prednisone which I took alot of for two month and six months of pt. Also tried tens unit, but that did not help much. When they stopped helping my pm was pushing a neurostimulator, but my neurologist and gp were afraid of infection and more complications with RSD, so I didn't do it. Then I tried accupuncture and that was a disaster. More spread. Even though I explained that i had rsd, i don't think the dr really knew what it was. She said she did, but i just don't think so. So now I'm just told to exercise and keep taking meds. They said if I don't take meds while I'm in pain with RSD it could aggravate it. I was also told by my pm and rheumatologist and neurologist that after 2 years of RSD, there is not much else they can do for it except meds and prescribe exercise. So I am just going to keep exercising and taking my meds and pray that this doesn't get any worse. I was never told of of this suprascapular procedure and because I'm not a dr I can only tell you my experiences and what my drs said. I can also say that when I was first diagnosed with rsd I was more worried about upsetting my drs by questioning them and getting second and third snd fourth opinions. I now two years later am not the same person. Though I'm in constant pain and feel like I've been throung hell and back, I speak up more to my drs because I'm afraid if I don't I will become a guinea pig. I've had drs tell me not to do certain procedures because they were just money makers for other drs (like the neurostimulator). I don't know if this is true or not and don't want to scare you to not do a procedure because of this. I'm just telling you so that you may want to consider getting more than one drs opinion on this procedure and it's side effects. Maybe get 3 or 4 opinions. I've lost some drs because they didn't like me questioning or disagreeing with them, and I have no regrets. I don't want drs like that anyway. Just be prepared for that too being that there are not many drs who don't know about rsd, so try to always have backups. I haven't had many do this, but there were a couple. They don't come right out and say it, but all of a sudden they are either booked up or on vacation all the time or want you to see nurse practioners. (Nothing personal but I prefer to see a dr.) You have to do what's right for you. And what works for one rsd person, may not work for another. And talk to your loved ones who you know for sure really care about you. I was very scared too. I still get scared from time to time. I don't know what the future holds but I do know that I am stronger because I have a loving family, faith in God and a wonderful bunch of friends from this website now. I hope I helped. Please just remember that I'm not a dr but hope my experiences help guide you to the right dr. And find a dr you trust alot. My neurologist and gp are my guiding stars. They cares so much. You can just tell in your gut who really does and who sees you as a lab rat. Well Good luck with your decision and I'm here if you need a friend. Take care and get some rest. Stressing about it is going to make you feel worse so try to relax. I know it's hard. There are alot of new shows on tonight so maybe that will give your mind a break for a while. Get several opinions and check online for info about it too. Also remember to check healthgrades on drs backgrounds before seeing them. That's online too. Bye for now and please know that you are not alone. The people on this website care so much and understand what you're going through. Think positive and keep the faith.
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