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Member
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Join Date: Apr 2012
Location: Indiana
Posts: 430
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Member
Join Date: Apr 2012
Location: Indiana
Posts: 430
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In the beginning for me I had 4 lesions in my brain and no where else. All other tests came back normal including the spinal. Over the years I would get more brain lesions, then less. My relapse in Oct of 2011 MRI showed no active lesions, but boy was I in a major relapse. You have to go by what your body is telling you, not so much those MRI's. I have a lot of lower body problems, yet MRI's show no lesions on my spine. Neuro says just because they don't show them, doesn't mean they are not there. MS is so hard to dx, its not a 1,2,3 your dx. A lot of us here took years of yes you have and then no you don't right back to yes you do. Its like a merri go round. I was dx before there were any abc's, so I was treated by symptoms. If your neuro can at least do that in the meantime for you, go for it, until you can get into the MS clinic.
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Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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