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Old 09-26-2013, 01:06 AM
SoftTalker SoftTalker is offline
Junior Member
 
Join Date: Oct 2012
Posts: 83
10 yr Member
SoftTalker SoftTalker is offline
Junior Member
 
Join Date: Oct 2012
Posts: 83
10 yr Member
Default MG Exacerbation

MG is still in high gear. Greater than usual ptosis, swallowing and breathing problems continue. Walking very difficult.

Went back to neuro because of increased breathing issues, and still have weakness in left arm.

Pushed up dosage of prednisone to 50 mg a day - after a week will start decreasing. WIDE AWAKE tonight. I wonder why............

If not better - or if I get worse, then it is IVIG. Had IVIG a few years ago with first and second MG crises. Same neuro then as now.

Neuro doesn't think the flu vaccine itself caused this acute exacerbation.

He thinks I had a "bad stick" ???? - and because I have lost so much muscle in my arms (thanks to MG) -
that is why I continue to have more than usual atypical upper arm weakness.
The pain and shock of that "bad stick" is what has caused MG exacerbation, per my neuro.

Thankfully my arm's strength is returning. Slowly, but surely. Sigh.......
I was beginning to be afraid of permanent loss of strength and use of left arm.

And my neuro, I can tell, is quite perplexed about all of this.
Me too...........

Gotta take this MG stuff one day, one hour at a time. This has been too scary - getting this close to another crisis.

Wahhhhh.......

I realize had taken my "stable MG" condition for granted..........

I want to get stable again. And this time, I will be grateful!!!
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