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Old 09-26-2013, 01:15 PM
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EddieF EddieF is offline
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Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
10 yr Member
Default Howdy Partners!

Between installing new cpu, ram, ssd harddrive & reinstalling Windows, I didn't make NeuroT a fav & email notifications from NeuroT didn't come in anyway here I am!

Tecfidera- been taking it 4 months now.
I never have stomach issues,
Mild flushing (if it was even flushing- was hot at night sometimes) lasted maybe a month or 2 but absolutely no problem,
Muscle loss or strength compared to Tysabri's about the same.
Spasms were always severe when I move after sitting still for 1/2hr or so, I can't say they've worsened much on Tecfidera.
Spasms/sudden sharp strong jolts after lying in bed for an hr watching tv at bedtime or making up med supplies possibly reduced - let me explain...
After 3rd week of Tysabri infuse, i'd get the jolts in bed often till my next infuse. Ty worked excellent for 3 weeks, wish infuse was every 3 weeks.
Tecfidera- i'll say the jolts i'm speaking of are slightly less frequent & more consistant since Tec is taken daily.
I have 65 more laps to go in my 28' long pool for a 2013 total of 3,000
Swam 2,100 last yr & yr before as well on Tysabri.
Same muscle strength Tec vs Ty, I just wanted to reach 3,000 this yr and pushed harder.
I take 140mg's of baclofen/day plus 20 other meds & vitamins combined.
Eyesight- maybe it's a bit worse over the past 4 months? Haven't taken medrol either in 6+ months which seemed to help eyes. I forget to ask for script cause neuro appt is short & too quick even for me. I'm fine w/o it though or i'd get it.
Yes I took medrol dose pack maybe 4 times on Ty and all it did was help not hurt but that's me.
WBC- for 1st time in 5 yrs it's FINALLY going down. 11 it's at now from 15, 16, 17 which is thru the roof for past few yrs.
Yes the Tec lowers white cells BUT- after 1st month they actually went up a point which ****** me off heh.
I'm staying on Tec for a couple more months, then i'll decide if I want Ty back. So far so good.

Lunch break over.
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"Thanks for this!" says:
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