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Old 09-26-2013, 06:20 PM
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chaos chaos is offline
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Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
chaos chaos is offline
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chaos's Avatar
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
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The only thing I still have to do with the lawsuit is the mediation hearing, hopefully in just less than a month. I so want this to be over. I've already spilled all my personal details to them. So. much. fun.

Some questions I've been thinking about, and I'm sure I'll add more:

1. How many of you work? Or, how long did you work, go on SSDI, etc? Right now I'm toughing it out, suffering, not letting work know how addled my brain is but I can't keep that up for long. My job is good physically, it's the mental stuff that's the worst.

2. How do you keep warm in Winter? I'm in CA so it's not horrible, but I lived in my Uggs last winter, even sometimes to work, currently I have my space heater on my feet, which is often. My lower legs are often blotchy purple.

3. Did the pain progress over time, or did it plateau? Did the pain just have bad days? Breakthrough pain? I get everybody is different, so maybe those who have it bad in the feet are better to answer.

4. Were there any improvements you had to make in your home? We're hoping to buy a house soonish and I feel like I need a one story, big kitchen that I can put a chair in to sit on while cooking, area where I can get sunshine if it's cold out, and a fireplace. I've seen a lot of people mentioning they got a jet tub for their bathroom.

5. Do you use any mobility devices? Last weekend I overdid it and had to use my husband's arm. I would have used a cane if I had one. Most of the time I just get up, say ow ow ow and hobble along.

6. Is there anything natural I can use/take that I'm not already doing? (magnesium, D, B12, as well as smoking MMJ, I'd die without that, and I need to add C)

7. For somebody sensitive to drugs, what are you taking that works? I'm trying to explore all options that are non-narcotic/opiates. Tramadol was horrible, for example of my sensitivity. Doc suggested Prialt.

8. Is there anything you did for your tremor if you had one? I have one in my right hand that started in July. Doc gave me propranolol, but as my BP is super good, it just made me beyond tired to a point I felt unsafe on it and stopped. The tremor is only bad when I'm worn out and super sore, otherwise it's not bad, but I don't know what it'll do down the road.

9. Is there a site that has info on this for kids? I tried to talk to my 11 year old about this last night and she brushed it off, but she also has mild autism. Throughout the last year or so she's told me she thinks I'm faking it. The tremor was the only thing that really got my husband to realize something was really wrong.

10. Do you hire help around the house? Or do you force yourself to do it to keep active? I would love to get somebody to clean the shower and mop the floors, help dust. I can do the laundry and picking up now (on weekends only usually, as it takes so long to do), but shopping can be hard and I don't trust DH to get the correct items for me. Heck, the only time I ordered from Safeway to be delivered I didn't get the correct items. I'm a little OCD when it comes to kitchen stuff. And with two vegetarians and me with an onion allergy, it's impossible to buy most premade items, I get a few things from TJs.

11. How well are you all sleeping? I had a sleep study done and it showed my pain is keeping me too alert so I'm not sleeping well. I have to sleep in until noon most Saturdays to catch up. A few days I've come home from work, gone to bed and slept all night. I'd guess the pain pump would help this. I don't have issues falling asleep, but it's not real sleep. I know I need good sleep to heal.
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