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Old 09-26-2013, 07:53 PM
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
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Hi Vrae, I'm so sorry you had such a bad night. I hope tonight is better for you. I get spasms usually in my left calf sometimes, but not the torso. I do get terrible pains in my stomach and feet and hands now though. I take extra percocet on those really bad days like pm dr instructed me to do, but I try not to unless its really bad. a heating pad seems to help too. (just don't fall asleep with it on.) (I've done that sometimes. Not a good thing to do.)
I had a oopherectomy (ovary removal) last year and got an infection from the mesh they put in plus part of one of my ovaries was not completely removed. I was supposed to have both removed along with endometriosis.
So I had to get a complete hysterectomy (plus the partial ovary that was left behind), the endo that was left behind and had the abcess from the infection from the mesh removed, plus two cysts. I had a robotical surgery in ny from a specialist for endometriosis and feel less pain now, but it's still not completely gone. I was just in last tues. and was told endo has not returned and now there not sure why I still have pain. It might be the meds I'm taking, so I'm trying to cut back on advil and it's seems to be helping, but my pm dr told me that it could take a year to recover.
I don't regret the hysterectomy becuase my cycles were bad too, but I would never want a mesh again. I didn't even know they put that in until I got an infection from it. But I'm not a dr so I would check with one if I were you and see what they say.
My rsd pain seems worse at night and I don't sleep much either, but I don't have flare ups all the time. I don't know what triggers it. I wish I did. I really do hope you have a better night. My thoughts are with you. Take Care.
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"Thanks for this!" says:
Vrae (09-26-2013)