Hello, my name is Anne Marie. I really would like to talk to anyone else who suffers with Myasthenia Gravis. I want to learn how others with this disease manage their lives. I have been extremely fatigued for at least a year. I was having trouble with my asthma as well...my meds for Asthma just weren't working anymore. Finally when my left eye started to droop the doctor decided to test for M.G. FINALLY an answer, although it really wasn't the answer I wanted to hear.

Will I ever get my strength back? Will I ever be able to garden for hours anymore? I have been taking Mestinon for about 8 weeks, since I was diagnosed. I started with liquid and slowly built up to a full dose of 60mg 3x day and then one Timespan ( slow release Mestinon) at bedtime (180 mg that lasts for 12 hours ). I wish I could just take the Timespan twice a day. It works the best. I do get a lot of sweating and some G.I. issues but so far I have been able to manage it. The sweating is the worst. I'm hoping over time this side effect will diminish. This protocol gets me through my day but I still tire easily and struggle to not have to nap at 3pm. I would appreciate any thoughts or suggestions from other members. Thank You!