I was on 30 a day then 40 then 50 then finally 60 I was able to swallow better and able to eat and get my weight back to where i was before lambert eaton set in..

Then out of the blue done, it just stopped working, I was and still do actually get weaker from it as it is a common effect and side effect of the wonderful prednisone.

I am now "tapering off" of it I take 30 every other day for a week then I will do a week of 25 every other day etc etc lowering 5 per week.


They want me to start cellcept i have it here tonight (the liquid) and after reading all the stuff about it i am not sure i will take it at all..

I also get IVIG 2 times a week every other week ang get maybe 1/2 of a day where i can walk up the steps without ripping myself up by the banister..

the only other options i am left with are cellcept or Rituxan NEITHER ARE OF ANY GOOD..
I just want to be able to walk again eat right again and breathe properly again..... seems like to much to ask..