View Single Post
Old 09-26-2013, 11:01 PM
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

So, I went to see my neuro on Monday. He didn't push the CRABs, nor Tysabri. He did give me documentation/printed material about Tecfidera.

He didn't write me a script, which I very much appreciated. He "gets" me, although I don't think he'll ever come straight out and admit so.

In any case, he wants me to read about Tec, and see if it's something that I'd feel comfortable taking (!). He did take my blood pressure, it was 110 over 70 (excuse me if these # are different than those in the USA, or else... I'm in Canada).

The last time he saw me, I was 80 over 50. I've always had quite low BP, so he was concerned about putting me on Tec because of this, but more so he's concerned about what Tec could do to me, as I have digestive (long term) problems.

I have the info from Biogen, now to decide if Tec is something I want to try. Everything we take, of course, has side effects. I may wait on this one and see how things go with my MS heading into Winter. If I'm stable, it may not be time (and I could wait a bit to see how others are doing on Tec).

I am curious to explore this option though, if the time to medicate comes for me. Yeah I can argue that the time is now, I am diagnosed for 5+ years with MS (probably had it for over a decade based on my neuro's findings). My hubby and parents are no so happy with the thought of any of the MS therapies. I have my own hesitations about taking these powerful meds. Perhaps some day though.... thanks for the information everyone has provided!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Erika (09-27-2013), ewizabeth (08-28-2014), SallyC (09-26-2013)