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Old 09-27-2013, 10:31 AM
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Vrae Vrae is offline
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Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default Thank you all so much!!

Thank you all for the comforting words. I really do appreciate it! When nothing else helps, your words of knowing EXACTLY what I am feeling DO help. Thank you so much for the support! Last night was not as bad as the night before, thank God. The RSD was sure giving signs that is would be bad though.

Renee, I had taken high doses of ibu for a long time, and then the severe stomach cramping started. It hurt like hell. I am concerned that perhaps you too are falling victim of a long term use of ibu. It can tear up your stomach after a while. That stinks because ibu was my drug of choice for a long time.

Allanira, The front has arrived with fog. The clouds can’t get any closer to the ground as that is where they are sitting at the moment. Barometer at 29.84 and humidity at 82%. In this altitude, even the slightest change in pressure can be felt, and it’s interesting how I can feel it days before it actually arrives and then usually feel better once it has set in, or certainly when it has dissipated. I understand about that reaction to certain drugs. I hallucinate on morphine , therefore my alternative is dilaudid when things get crazy. I’m so sorry that you too are struggling right now.

Tessa, You’ve obviously been following along, thank you for that. It’s true, I have been rolling downhill at a pretty good clip recently, and not with wheels . Lack of sleep truly plays hell on the entire situation. Everything begins to get exacerbated. I hope that you can get some rest real soon.

Bram darling, you ALWAYS make me giggle with your British expressions. Okay maybe this one is not so British, but still… “fed up to the back teeth”. Yep, they hurt too so I guess that’s valid and I will steal this saying as well. Can’t wait to drop that on the family. lol Having your heart get shocks or twinges would be definitely scary! I hope that this is not often. Hell.. even once would be too often. I have heard of that with CRPS, but have not had it hit there yet. However, I started having something low (an organ, ie, balder, uterus, or something) flip flop, spasm last night for a few minutes. Starts to freak me out when I KNOW that the internal organs are being affected. It’s true, we are our own best physicians. Oh, and don’t let that pond get in your way… I would love to meet you and hot tea sounds great!

The Mesh: When my obgyn first recommended this he told me what a major surgery (hyster & bladder mesh) this would be. That stopped me in my tracks. Mostly because of the CRPS and I was going full tilt with my business. There was no time for recovery. Now I am glad I didn’t rush to proceed. The TV is flooded with injury attorneys seeking patients who have had problems with meshes. I guess the ole bladder will just have to continue its descent.

Hysterectomy: This has me in a quandary. My mother died of breast cancer back in 2004. She has five siblings, four of which are female, two of which also died of breast cancer before her. The two remaining sisters both had hysterectomies and both have not had cancer, and both have now outlived their other siblings.

I am definitely perimenopausal, and my cycles are bad; they have never been easy. As the CRPS gets worse so does the impact of this monthly hell. It can literally cripple me. I’m no doctor, but since I am my own best physician, my hypothesis is that the Neurotransmitters are packaging up additional hormones; Gonadotropin-releasing hormone (GnRH), Follicle-stimulating hormone (FSH), Luteinizing hormone (LH), Estrogen, Progesterone, and Testosterone, OR are being received by the receptors in a different way that is causing more, way more, pain throughout my central nervous system.

So not only do I have a prolapsed uterus and bladder, but the monthly hell the CRPS puts me through when I cycle, and then there’s the breast cancer factor, I feel like I am going to have to do something. I’m just not all together sure what that something will be. This is why I want to talk with my doc again and see what other options may exists, like perhaps just cutting the tubes. <sigh> I have no idea really.

Meditation: My mother tried to get me to do this. On a couple of occasions I have given it a lame effort. I feel like this is a good idea and have no idea why I’m not giving it more effort. This leads me to ….

Work: I am TRYING to get my final production out of the studio and I can put my business to bed. It’s a huge project for the CEO of a major hospital in Denver. No pressure. I have already missed my first deadline, and reached out to them pleading my case of CRPS and was graciously afforded more time. Yep, I played the CRPS card for the first time ever in my business. I have never wanted my clients to know that I was limited in any way. That pride thing is no good, I know. Anywho, so I am desperately trying to finish the work being limited to how many days, or hours in a day that I can dedicate. I am sooooo close to being where I can dedicate my days to my health, I can just taste it! I also want to get this darn thing wrapped up before winter fully sets in. Maybe, just maybe, when my world settles down a bit I can give meditation another go.

Whew; I think I touched on all points. Thank you ladies so much for your support. It means more to me than you know. and ps... today is better. Stiff joints, but better.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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"Thanks for this!" says:
Brambledog (09-27-2013), RSD ME (09-27-2013)