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Old 09-27-2013, 02:57 PM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Sorry you have this!! I don't have a confirmed diagnosis, I'm still a mystery.. but I do get IVIG for this.. I get awful joint pains.. It makes me so mad, since I feel like I should just mentally over come it, but it makes my body not be able to do things as It can't just push through it sometimes - bending a knee to walk up stairs or bending my wrists.. My wrists are the worst.. but it can affect, fingers, elbows, AC joints, ankles, knees and hips...

My ANA is always quite elevated.. but ESR/RA negative.. they started me on plaquenil and it helps tremendously.. I thought for a while it could be a reaction to IVIG.. but it worsens when the IVIG starts wearing off.. and I did have some before IVIG.. Good luck!
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