Hi Anne, I had been really tired and fatigues for a year or so before my actual diagnosis as well. It was actually my eye doctor who suspected the MG. I was having double vision when I looked to the left and a drooping eye lid on my right side. I was also having trouble trying to "sigh", if you have had that symptom I think you know what I mean.
Right now its been about 16 months since my diagnosis. All my symptoms are better but do get worse depending on stress and the heat. I also have trouble eating, with my lips getting numb and my speech getting slurred when I chew too much. I am now on 60mg Mestinon every 5 hours as well as Celcept twice a day. I do take prednisone, 10mg every other day but I have to be careful because I am diabetic as well and it raises my sugar quite a bit. My neurologist is trying to get me off the prednisone all together though. Well that's my story, hoping we can share more as we go forward.