Heather,
Don't think of your daughter's situation as a battle that you can win or lose. Instead, think of it as a marathon that must be run one step at a time. She will need to draw from your strength and resolve. Therefore it is important that you remain hopeful. RSD is a condition that come with ups and downs; highs and lows; good days and bad days.
All of the comments posted should give you a good sense of what a loving and caring place this forum is. There is a wealth of knowledge and information here - please draw from it.
Above all it is of the utmost importance that you get her competent treatment by physicians experienced with RSD patients.
Trust but verify.
I will remember you all in prayer.

EJ