New Member
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Join Date: Oct 2012
Posts: 4
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New Member
Join Date: Oct 2012
Posts: 4
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Newly diagnosed with Myasthenia Gravis
hi anne i had a MG crisis last October and was in hospital for 3 weeks When asking the neurologists in the hospital about experiences with MG most of them had almost no heavy knowledge but they did recommend one Neurologist in their group that sees at least 1 MG patient a day and was sent to him when i was released from the hospital. He kept me on both Prednesone and Mestinon for about 2 months as i was pretty bad with speech, eyes and swallowing problems. When i seemed to be much better he took me of the mestinon and only on the Prednesone. That was about 8 months ago and have been tapering off the Prednesone since. During the trigger period in august he did not reduce the amount of Presnesone but now as the weather here in NYC is getting cooler we have started again to reduce. But the most important thing is to find a neurologist who knows about and truly understands all aspects of MG. Best of luck our new friend.
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