I've been out most of the day, and stuck on the bus and outside (where it was raining some of the time), where the normal movements of the bus were painful.
I had some appointments today, one with a therapist, who is starting to help me come to terms with this. I'm a new diagnos-ie, so I reckon it's probably going to take a while.
I did get my meds adjusted - actually just having my Neurontin increased. It was a little amusing that I was already on it, just on not a near high enough dosage. It was good to know that my doctor was familiar with the problem, and offered what help she could.

It's frustrating to me (as well as to a lot of you, I'm sure) about how the pain varies and there is no way to guess as to what it might be. I guess the worst for me today was when it felt like my left arm felt like it was being melted off the bone. I didn't much like the mental image when it came to me, but that's what it felt like. Not quite as bad right now, we'll see what happens between now and bed.

Questions:
1) Has anyone else found Neurontin to be helpful?
2) Is there any advice on coming to terms with this disorder (asking from fellows, not professionals)?