Thread: Please help me!
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Old 09-28-2013, 05:25 AM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hi Angelina, hadn't seen you for a little while, I'm so sorry you've been dealing with all this sounds frightening, I can totally understand you feeling like you're losing control....

I'm glad that your scans and tests were clear, although of course it doesn't help your pain

I had gallbladder problems myself and had it removed a few years ago (pre-CRPS) and I will never forget the pain of that - it was weird because it wasn't near the gallbladder itself, but in my upper back. It's called referred pain, and it's because you don't feel the pain in the gallbladder itself due to the way the nerves are in that area. So although it's a good idea to check everything out, I doubt it's that from what you describe.

Have you been able to see your pain specialist since these pains started? It sounds like you need to see them and discuss the possibilities of what this could be. I know you must be scared of it being the spread of your CRPS, but it doesn't mean it is - and we all really hope its not And now that the tests are clear the best person to help you is a specialist who can at least advise you on what's best to do, and hopefully help to control the pain.

In the meantime, the meds you have, warmth, soothing teas like chamomile, relaxation (I know, I know, sorry, but try if you get a bit of a let-up) and a healthy diet with plenty of vitamin C (2x 500mg per day) to help prevent/limit any spread, and people who can help to distract you a little with conversation are a few things (you've probably already tried them!).

I'm so sorry Angelina, I will be thinking of you, and hoping that whatever this is, it can be sorted out and you can be freed from that terrible pain. You have to hang in there though, don't let this horrible disease overwhelm you.

Take it easy. I'm sending you soft virtual hugs, and a hand to grip yours in the darkness. You'll get through this.

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Angelina55 (09-28-2013), birchlake (09-28-2013), ginnie (10-05-2013), RSD ME (09-28-2013), zookester (09-28-2013)