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Old 09-28-2013, 05:37 AM
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Quote:
Originally Posted by Jason93 View Post
Hi there,

I'm so glad I found this site and all the great people and info. So I'm in need of doing a little venting because I'm beside myself. On July 13th I hald a fractured talus and a trimalleolar (7 breaks all around the ankle joint). Two days later they tried to cast me but the burning pain on the bottom of my feet was brutal. So I left in a walking boot as my cast. Certain parts of my feet were burning so bad. The baby toe down the side of my foot, my big toe and the are below it on the ball. All of the areas were extremely swollen and red where I got the burning pain. Around 4 weeks the pain started to lessen and by week 6 I had no pain. Prior I did experience the needle like pins and sharp pains.

All along when my foot goes down it would turn purple, elevate it and it goes back to normal color. When I put it down it swells up and turns purple and on the top right around the pinky toe right below it, it starts to pool or sell and then I get the shooting stabbing pains with burning sensation.

I asked my orthopedic about this and he said sounds like rsd/cprs. I went to a neurologist and at the five week mark I had too much swelling, so I went back to her yesterday (almost 11 week) she scheduled me for meg tests for this coming Monday.

I also have an appointment with a pain mgmt clinic on Wednesday. I'm freaking out right now because I appear to have a lot of the symptoms. I will mention that at 8 weeks only one of my 7 bones were starting to heal. The ct scan said diffusers osteopenic probably due to disuse.

So I still have swelling because instill have broken bones. Also when indomthe tinel test I get the positive meaning I van immediately feel the electric shock so I thought maybe could have tarsal tunnel. I can't walk yet and when I try to weight bare the biotin of my foot isnunbearablenwith a sharp pain that alsomfeelsvery fat and pressurized almost like its compressing a nerve.

I apolplogize for the long winded response but I'm really stressed out as I can't seem to get straight answers and Ifimdomhabe it I want to treat it immediately as a week from Saturday is three weeks. My main problems are purple leg when not elevated along with swelling and too painful to pit weight on. Also the underside of the foot in certain places feels extra soft and hyper sensitive. I also have a shiny smooth looking patch of skin where my largest swelling occurred on the inside of the ankle and its still very swollen so I'm not sure if its shiny skin like cprs or just stretched out and smooth.

I sincerely appreciate any and all advice, opinions etc. I am an extremely active healthy or was 37 year old male who needs to be on is feet for work . I'm wondering if its possible I have nerve damage that is causing this or if its cprs. If it is what should my next steps be? Many thanks.

I have included a few pic at different stages. The two red ones of my feet are very recent and that's what happens when they go down.
Hi Jason,

Wow, I hope some of your symptoms have started to calm a bit, or you at least get some answers soon. I know how frustrating and frightening it is when you know something is very wrong but you don't know what, and it takes so LONG to get any answers... All those tests and appointments take forever when you're in pain

Firstly, I would advise you to post your initial message in a new thread rather than within another, as you'll get more of a response and hopefully reach some folk who can specifically relate to your injuries.

Regarding whether you have CRPS or not....that's a biggie. I don't think any of us here would say that yes you do, because there are still so many things it could be. As you say, some of the symptoms sound very CRPS-like, but others don't. They could be due to something very different. It's important to try to get the right diagnosis. In the meantime, make sure that your docs address any pain you have, because if it does turn out to be CRPS it's important to get on top of that. You could also ask them to consider prescribing a nerve med like amitriptyline, Gabapentin or Lyrica to see if it helps things - it's a useful diagnostic for them.

Take care of yourself, and I hope you get some answers soon!

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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