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Originally Posted by Angelina55
The last two weeks I have been in a complete misery hell! It started out with kinda like cramping in my pelvic area then stabbing pain. It then went into my stomach and kidney area. I have been nauseas, and horrible pain in my whole pelvic, abdomen area inside. I feel like my insides are being torn and stabbed and ripped apart!!! I want to die! And the burning! I am starting to think my CRPS has spread into my organs. I am wondering what others have feel? I can't breath sometimes, well most of the time. I don't know what to do. I have CRPS in my legs and am at a loss now. I ..... I just don't know....
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Hello Angelina,
I am so sorry to hear that you are having such a terrible time right now, I wish there was something I could say or do to help you get through it!
The pain and area of pain sound very familiar to something I go through periodically. The nerve damage I have is right in my groin crease (where the hip/thigh bend) and I have a neuroma just to the inside of the hip bone or in the very lower pelvis. This causes severe pain in my lower abdomen/pelvis during my cycle as well as when air or stomach troubles are causing movement in my lower bowels. There has been several times when I felt much like you describe. What we (my doctors and I) have discovered is that when there is pressure in my lower abdominal area and or pelvic area during my cycle that this causes muscle spasms that affect the neuroma and nerves surrounding it. It makes sense since often time it is scar tisssue that traps nerves and if this scar tissue is disturbed like with cramps then that would escalate pain. When I sit upright and even clear my throat, this sends the shocks down my thigh it is reproducible every time and is the same thing that happens when I walk or flex my hip/thigh; have you noticed anything similar?
If you have ever had any abdominal surgeries or infections then this can also cause adhesions to form. Adhesions are scar but it is a "sticky" mess of scarring that actually causes internal organs to basically stick together. If you have adhesions then cycle pain, gas, constipation and even intimacy can severely increase pain at times. What can be done for it - warm compress, muscle relaxers, OTC medications like Aleve, Ibuprofen, Advil or even Midol. Stronger meds can work but.. I personally don't know which one would work for this type of pain.
Did you ever get a new PM doctor? What do they have you on?
You will get through this now and in the future!! I know it is hard to fathom that right now but.. you will. What are you doing to help you get through the tough times? Having a "pain flare protocol" will help when we are so wracked with pain it is hard to think straight.
I hope you wake up today feeling better than yesterday,
Tessa