wow... so interesting that so many of you have similar issues too!!! Makes me feel not quite as crazy As, I have never ever had any of these issues until all this weakness/mess started!

I haven't mentioned it to my dr yet, I haven't been to my neuro follow up since I last noticed it, and especially not since I put the two things together as related, not just coincidence.. Maybe that also explains why position (lying down, instead of standing upright) helps relieve the symptoms more as well! Someitmes my ears will hurt so badly it feels like my eyes hurt when I move them.. it's not much fun!!!

Yall found anything else that seems to help/work? I'm hoping my IVIG on tuesday will take care of it, as it did last time this happened!