Quote:
Originally Posted by Balanchine
Hi folks - wondering about who the best specialists are in this country when it comes to PN. My own neurologist, whom I like and respect, has told me that he has no treatment suggestions for my idiopathic PN (i.e. no underlying disease, no auto-immune, no diabetes, no carpal tunnel, no vitamin deficiency, etc., etc.... at least according to all my tests).
This seems to be the concensus as far as I can read online. So I'm thinking about looking to other docs who may specialize in this condition, wherever they may practice, and getting in touch. I'd welcome any suggestions.
Thanks.
Balanchine
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I see that you are in California. Johns Hopkins on the east coast, in Baltimore, is considered top-notch as are a few others- just a warning though. Your doctor's diagnosis may still stand even after being seen by the very best in the field. Many neuropathies, like hereditary ones, do not have any treatment at all. It is worth checking to see if your doctor overlooked something, but often they haven't. We are not used to hearing in this day of medical miracles that there is nothing to do, but it does happen.