Quote:
Originally Posted by Angelina55
I don't know what is taking so long. I was thinking of calling them to ask about the Seattle thing but I didn't want to be rude. Then again it is my life we are talking about, so I guess it is ok.
My family doctor wanted me on both Lyrica and Cymbalta, I don't know why. He said it just works better. I can ask about Amitriptyline. I have heard about the Butrans patch once before, so I think I will ask about that too. The oxycodone is just such a life saver for me it scares me to not have it, ya know? It is the only thing that has so far given me any relief. Sometimes it doesn't work very long, but at least it is relief and I can sometimes actual get out of bed and not want to just scream and scream!
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When I initially made my appt. to see the PM doctor I am currently with I made the appt. myself. I didn't need a referral to make the appt. and I really wanted a fresh consult based on his own observations/diagnosis (I guess I was at the time still hoping somehow I was misdiagnosed and something could be done to relieve me of the pain.. bummer that was not the case). I did take with me all my records, xrays, chart notes, MRI's and recent pharmacy detail report with all my prescription history. He was wonderful, took his time and I am very pleased with his care/support so far. He didn't even mind or become offended when I found another doctor who specializes in CRPS to also consult with and now they are working together to help me, so don't be afraid to reach out on your own. Good doctors don't mind as long as you keep everyone in the loop with regard to all care being received. I make sure all doctors and myself are copied on all records that way there is no misunderstandings and
no stone un-turned in my care.
Regarding the Butrans patch.. I also have oxycodone for breakthrough, my PM doctor insisted I keep that on hand just in case I needed it. Also it takes a few days for the first patch to build up the correct level so you will need to rely on what you are currently taking until then. I am much happier with the patch and I was so reluctant to try it!! I wasn't good with medicating and seem to always let myself get overcome with pain before I took anything so this works better for me. The only drawback is that I have a bit of nausea/vomiting with each new patch (but I do with oxy also) so we are working on how to combat that without adding anything new.
Pain Consultants of Washington is where I am going.. you should really check into them. Shoot I would even take you to your appointment if you needed help!! I'm heading your way to visit my in-laws in a couple of weeks maybe we could meet up for a cup of coffee or something?
Also.. have you considered getting an internal medicine doctor? They often understand chronic pain and some even work closely with PM doctors. That might be a good choice for you since you have more than one issue going on? Just an idea.
Hang in there,
Tessa