I'm beginning to think that it's not a matter of missing anything, but PN specialists have a pretty good idea of which kinds of PN they should look for, either because they're treatable or because they could mean something much worse. Anything outside those pretty much fall into the category of "untreatable" as far as medicine knows today, so they don't look any further. I think they'd really rather be able to treat us rather than cutting us loose and wishing us well.

I know that my neuro, because he is affiliated with the hospital he is, takes a more conservative view than others might. He pretty much dismissed the idea of R-Lipoic Acid (which has helped me tremendously). So some of the other major centers may be more thorough and willing to do more testing, etc., though I'm not sure if/how much good that might/might not do.

I think the best I was able to do for myself was learn stuff here and elsewhere on the web, and try some things for myself. If it can't hurt to try it, then it can't hurt to try it.

Doc