Quote:
Originally Posted by St George 2013
Oh Julie....Bless your heart.
I'm telling you...just trying to find out I have SFN has been a challenge and I've had to do all the research and even had to ask for the skin biopsy....lol....All prior tests were negative (ie nerve conductivity and that needle thingy that HURT a lot). It was driving me crazy....2 + 2 should equal 4 but with the doctors 2 + 2 equals whatever.
My dr used Bako for my biopsy and their results scale is 0 to 15. 15 being the best. I was totally shocked and unprepared for my results of 0....but I cried because I was so relieved to have a diagnosis after 5 months.
I was pre-diabetic with only burning toes at the end of the day when I wound up with serous uterine cancer (Serous is the actual name and rare). Then it was 6 rounds of chemo and 1 month after the treatments ended (Mar 2013) I could barely walk. This pain is unbearable at times and mine seems to be progressing to include more of my foot. At the beginning it was from the middle of the foot up to my toes....symptoms are: burning, electrical like currents, numbness, a crawling feeling under the skin on my feet, ankle cramps and so on. This is 24/7 for me an ebbs and flows alllll day long 
Please let me know what is going on with you. I'm brand new to this site but have been reading the threads since Dec 2012
It's a nice, cool morning in Georgia |
Hi Georgia, it's a stormy night here in the Pacific Northwest.
My toes are numb, well I can feel them a little. This started over 2 years ago. Then the backs of my heels started burning badly. The Neuro sent me to a Podiatrist for my heels. Said that wasn't Neuropathy! I went and got all kinds of diagnoses..from bursitis, Plantar Fasciitis, Achilles Tendon (both feet mind you) Etc. I did stretching exercises and icing 3x a day for 6 weeks.. Nothing. Heels still felt the same. Spent hundreds of bucks on orthotics since I was also told I have pronation.
I decided to go for yet another opinion. I have now gone to a Sports medicine Dr. He took tons of Xrays on my feet and ankles. He thinks it's my Cutaneous nerves. I go back in a week or so for reevaluation. We'll see if he can help me. I'm so frustrated and in so much pain.
In the hot summer days if a breeze comes in the house my calves freeze. I sit with 3 blankets on them and it's almost 80 degrees in here. No a/c here.
I have had the nerve conductive tests plus a EMG. Both were negative which I expected. My Neuro just said I had Small Fiber Neuropathy then. She didn't say a skin biopsy was necessary.
I am so sensitive to drugs I've been unable to take anything for it. I've had RLS since childhood and since 1999 I've been on 1200mg Gabapentin. They've tried upping it but each time I get confused and light headed.
I'm at a loss to what I can do.
