Originally Posted by Jewels43

Hi Georgia, it's a stormy night here in the Pacific Northwest.

My toes are numb, well I can feel them a little. This started over 2 years ago. Then the backs of my heels started burning badly. The Neuro sent me to a Podiatrist for my heels. Said that wasn't Neuropathy! I went and got all kinds of diagnoses..from bursitis, Plantar Fasciitis, Achilles Tendon (both feet mind you) Etc. I did stretching exercises and icing 3x a day for 6 weeks.. Nothing. Heels still felt the same. Spent hundreds of bucks on orthotics since I was also told I have pronation.
I decided to go for yet another opinion. I have now gone to a Sports medicine Dr. He took tons of Xrays on my feet and ankles. He thinks it's my Cutaneous nerves. I go back in a week or so for reevaluation. We'll see if he can help me. I'm so frustrated and in so much pain.
In the hot summer days if a breeze comes in the house my calves freeze. I sit with 3 blankets on them and it's almost 80 degrees in here. No a/c here.

I have had the nerve conductive tests plus a EMG. Both were negative which I expected. My Neuro just said I had Small Fiber Neuropathy then. She didn't say a skin biopsy was necessary.
I am so sensitive to drugs I've been unable to take anything for it. I've had RLS since childhood and since 1999 I've been on 1200mg Gabapentin. They've tried upping it but each time I get confused and light headed.
I'm at a loss to what I can do.