Hi Lefthanded,
Thanks for the warm welcome! My TM attack was partial but it left me with a ton of issues and now that I am turning 53 the issues seem to have really compounded. My neuro put me back on baclofen as the spasticity has become unbearable at times and between the syrinx, DDD , scoliosis and myelitis it affects my entire body. He wants to re image me and reasses as there have been quite a few new symptoms. I have a huge deductible so it's hard for me to get all the testing at once.

My most recent LP was clean ( I never had the results of the first one which was back in 2002) and all that neuro said at that time was maybe TM and they would watch me. By that time a full year had gone by since the attack and I had quit going to the neuro who saw immediately after the attack as he was offering no treatment or help at all and I still could not walk normally and had so much weakness. Second neuro was no help either and I quit driving to downtown Houston just to be told they would watch me.

It makes sense now because I think they were waiting for a second attack and then the Diagnosis would have been ms. How they missed the lesion on t5 when I saw the first neuro still baffles me. The radiologist circled it and everything. I don't know if the report never made it to the second neuro or what. I am the one who had all the copies of my films and gave them to my current neuro who went through everything with me and when we got to the T spine he held up the film and said "we'll that's impressive"!

I asked him what he meant and he said I had an attack to the spinal cord called TM. He said clinically I look like ms now but that he needed an LP to be sure and since my brain MRI s have always been clear and the most recent LP he said he will be treating me symptomaticly.

I am so glad you told about the Facebook site for us Ladies. The "downstairs" is in pretty bad shape and I am just now getting to where I can talk to my neuro about it.

I can't imagine what you have been through with no colon on to of TM! That's a double whammy!

Now that we know what happened everything is making a lot more sense but what a rough road it has been getting to this point and I am in very good shape neuro wise compared to many of you. I am humbled by the bravery with which you all face these diseases and thankful for your willingness to share and support.