Originally Posted by madjock72

Hi all im William, and I`ve had CRPS since 1995 when i was in the UK Forces but wasn't diagnosed until 1997 with this in both feet.
It has now spread to my kidney due to a stent placed in my kidney to stop a blocking kidney stone in 2001. I did say at the time that i have RSD but was ignored over my condition and about 6 months after the stent was removed it felt like i still had the stone and stent in place and this hasnt changed since 2001 and everyday is like having a kidney stone and i dont even want to say whats its like when im having a kidney stone at the same time.

But its eventually spread to my whole right hand side of my body and now effects my arm and im currently waiting on my electric wheelchair to roll around on. My meds at this time are Ketamine on the highest does that you can receive ive been told by the pain management team and Fentanyl patches highest dosage and for the break through ive got some Fentanyl lozenges which i use sparingly. And even with all this i still feel the pain.